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Finding the Light in Dementia: A Guide for Families, Friends and Caregivers

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Finding the Light in Dementia: a Guide for Families, Friends and Caregivers' is the essential self help book that helps you make sense of dementia. By offering valuable approaches, tips and suggestions interspersed with caregiver stories, the reader can learn to care for and communicate with their loved one (care partner). Whether you're a spouse, partner, daughter, son, sibling, friend, parent or paid caregiver, this book is for you. Finding the Light in Dementia will help give you more confidence to care by: -Supporting you through a diagnosis of dementia -Helping you understand what your care partner is experiencing -Teaching you ways to communicate and connect with each other -Helping you make subtle changes to your home to help your care partner feel safe and content - Introducing practical and creative ways to stimulate memories to help with day to day living =Showing you how to create lifestories together -Suggesting ways to keep your care partner interested and engaged in meaningful activities -Providing tips for sleeping, eating and drinking -Suggesting ways to help your care partner with their appearance and dignity -Showing you ways of overcoming the challenges of changing behaviour, reactions and responses -Helping reduce the effects of hallucinations, delusions and misperceptions -Suggesting ways for you to care for yourself -Involving families and friends -Giving advice when considering professional care at home and in residential careKnowing how tired and stressed you may feel, 'Finding the Light in Dementia' is written in bite sized chunks that makes it easy to follow. By giving you space to write down any points you would like to make and providing question sheets for you to refer to when speaking with your doctor and/or legal professionals you can make this your personal guide. When following the approaches in this book, you should find that your care partner will feel more understood and you will become calmer thereby helping you both find a sense of connection and continue to live well. When my mother and I were caring for my grandmother in the late 80s/early 90s there was little advice and no guidance as to how to cope with someone suffering from Alzheimer’s. In Alice’s case it became so acute, my nan became a mute. We reached out to doctors, politicians anyone but to no avail. If only Dr Jane Mullins book was around at the time we would have had a friend to turn to. If you are looking after a loved one with this awful disease (now the biggest killer in the UK) and don’t know which way to turn then help is at hand. Jane’s book ‘Finding the Light in Dementia: a guide for families, friends and caregivers is the essential self-help book that explains common changes that can occur in those living with dementia. Let Dr Jane’s words be your friend. Russell Grant Throughout the book the experience and compassion of the author shines through. Jane Mullins is a dementia nurse consultant who has devoted over 25 years to the study and practice of dementia and all her knowledge is distilled into this informative, non-technical work.

Caroline Branney, who manages our Dementia Knowledge Centre, warns against making the proverbial mistake about judging books. Meghani, N.A.A.,Hudson, J., Stratton, G, and Mullins, J., 2023. Optimising older adults’ home spaces to enhance their physical activity level; an explorative qualitative study protocol. BMJ (Open), 13(2), p.e066940.Maybe start off with writing down their wants and not wants. For example, they may have specific religious and/or cultural beliefs that may influence what they eat or how they worship or they may wish to avoid certain medical treatment. It is important that their choices are documented and whilst, of course decisions can change, you have both taken some control in future planning. There are quotes from people with dementia and others, which provide relevancy and break up the chapters. I found it easy to read and absorb.’ ‘It is very easy to read, with lots of advice about everyday practicalities,’ says Janet. Gather props – you will probably find most things around your home, involve your care partner in collecting interesting objects. Think about sensory props such as an oily rag for a car enthusiast or the smell of sun cream lotion. Things you can do to help include many of the suggestions I give in my book, Finding the Light in Dementia, a Guide for Families, Friends and Caregivers. This includes: Finding the Light in Dementia Care™ will be delivered worldwide and will change the face of dementia care on a global scale. By contributing to our crowdfunder, you will automatically become a member of the Finding the Light in Dementia Care™ movement so that you are a key part of changing the face of dementia care worldwide (if you wish).

I am Jane M. Mullins and I have cared for people living with dementia for 30 years, in memory clinics, care homes, hospital and at home. I have supported care staff in all my roles and created and delivered Personal and Professional Development training for Health and Social Care students. My PhD research- A Suitcase of Memories explored multi sensory ways to help people living with dementia communicate with their loved ones and stay connected. I also work as a Researcher at the Awen Institute, Swansea University.Mullins, J.M., Tales, A., Musselwhite, C., Rich, N., 2022, “Rekindling couplehood” using a multisensory suitcase of memories: A pilot study of people living with moderate dementia and their partners, Ageing & Society. Be kind to yourselves you will need a little time to get used to this. It is usually helpful to talk to family and friends openly and ask for their support. Once you have had some time to get used to the diagnosis it is important to take some control and start to make plans together. There is currently no cure for dementia, but much can be done to help you and your partner live a meaningful life and remain well. These articles are here to help you. D elivered through film, soundscapes, music and animations to make it enjoyable, memorable and interactive. An assessment may also include recommending aids such as raised toilet seats and grab rails that will help if your loved one is struggling with mobility. CPR Guardian (CPR Global Tech Ltd) has been designing and manufacturing telecoms product for more than 10 years. Since 2010 we have helped over 1,000,000 people stay safe inside and outside their homes, supporting customers and their families across the UK, USA, and the rest of the world.

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